Moving Day!

Beautiful view from cabin

03/05/22-Moving day! Moved into my ‘safe space.’ It was off to a rough start with anaphylaxis and troubleshooting as the environment was not what it was when I toured, but with some education and trouble shooting things began to improve a little by 03/08/22. Created my wellness schedule for the next month. Also purchased Dynamic Neural Retraining System (DNRS) as part of my wellness plan. My goal is for the next 3.5 months is to be anaphylactic free. I would only leave for treatment with a desensitization practioner and infusions through my functional medicine physician. I also scheduled a Zoom Reki session for Saturday. I never experienced Reki via Zoom before, so that was interesting. My body is normally very sensitive to Reki with different sensations and usually a boost of energy after. I also note after Reki that certain joints that hurt prior to the session, no longer hurt for a period. During my Reiki session a flood of emotions came out and I was in tears. It was hard not seeing my husband every day and I missed my daughter (she is 19 and did not live at home). It was also a challenging week feeling poorly. I felt like I was being poisoned every day. A multitude of symptoms were worsening.

The Day After the Wedding

The next morning I got up, puffy again and some mild respiratory symptoms. We left for our mini honeymoon on the North Shore. Two anaphylactic reactions later, we had to stop at the emergency room because I was out of Epi pens. The physician put me on steroids as well so we could get through the weekend and enjoy our time. We had a wonderful time until we got back home and the anaphylaxis started again. I had so many reactions I have lost count. Our home was remediated, but the anaphylaxis continued along with rashes, gastrointestinal issues, and some odd neurological symptoms began to develop.

The Wedding→

The day after the fire, I awoke with a puffy face and rashes. Thank God for hemorrhoid cream and make up! I literally had hemorrhoid cream all over my face and eyes attempting to get the swelling down. It worked!! Lots of antihistamines and my inhaler, supportive supplements, and my day continued on. I was marrying the love of my life today!

The Fire

It was Friday, August 13, 2021, the day before my wedding. I was nursing a beta fish my daughter left with me who got sick. I researched beta fish illnesses and think I gave him the correct diagnosis. He was in and out of ICU for many months. He would heal and then get sick again. On August 13, I decided his suffering was too great and he need to be humanely euthanized, but I could not do it. I asked my fiancé to take care of “Leo, the Beta Fish” and I did not want to see what he was doing. So, he laid Leo to rest and we continued on with getting ready for our wedding the next day. I was marrying the love of my life and was so excited! We prepared for bed around 930pm when we smelled a strong chemical smell upstairs. We began searching for the source, but we could not find it and it became stronger and stronger. I had to get out of the house. First anaphylactic reaction. A few minutes later everyone came out of the house and my fiancé was also started to react. He called 911 and the fire dept came. They found the source which was a fish tank heater that was set down on the table; it was smoldering at this point. The firemen put it out and my fiancé and I sat outside until 2 am while the house was airing out. We went to bed, we have a wedding the next day!!

Back Story

Please read My Story on this page about my wellness journey thus far…I was healing and headed toward remission until a small fire (barely) in our home flared mast cell activation syndrome (MCAS). In my case, MCAS was acquired due to breast implants. That is when anaphylaxis started again and continued as I developed more severe reactions to the point I had to leave my home, and went to live in a cabin. My goal while I was living in the cabin for 3.5 months was remission….this is my story of next chapter of healing; my remission journey.