Another three months...

Hello Everyone!

Checking in to provide an update as I start my next chapter in the journey to achieve remission. Unfortunately, five months ago I experienced a set back that pushed mast cell activation syndrome (MCAS) to another level to include dysautonomia. For the last five months, my activity has been severely limited and I am dealing with new challenges as a result of the dysautonomia, but I keep working to adapt and continue pushing forward to achieve the goal of remission. I definitely have a new understanding of what some of my patients went through with spinal cord injuries as I manage some of the same issues, but differently related to the autonomic nervous system. My functional medicine physician also ordered some specialized toxicity testing that was sent to Germany for analysis; the results are helping with some targeted detoxing efforts. As disturbing as the results were to me, it has been useful with planning the next chapter of healing/detox (detoxing has always been tough for me).

Since my last blog entry, I lost my fulltime job as my employer no longer wanted to medically accommodate me…more loss, but I am looking forward. My self-employment is showing potential for growth and I am grateful for this, but this can take time. Meanwhile, I continue to look for another job with benefits that will accommodate me.

I am exploring my treatment options for the next chapter as I am still focused on getting MCAS into remission. This may require out of state treatment for a period of time. Following up on a referral, I found a clinic that has been treating breast implant illness and histamine issues since the 80’s; I am confident they can help me and I am grateful for the collaboration/coordination of my local providers.

My next entry may or may not be from a warmer, sunnier place…stay tuned.